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Meet Virsaviya Borun: Little girl whose heart pushes out of her chest every time she giggles

naijalog by naijalog
September 21, 2017
in World News
Reading Time: 4 mins read
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Meet Virsaviya Borun: Little girl whose heart pushes out of her chest every time she giggles
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THIS jaw-dropping video shows the heartbeat of a seven-year-old girl who was born with the vital organ outside her body.

Virsaviya Borun

Brave Virsaviya Borun was born with an extraordinary condition that means her heart is growing on her chest.

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She suffers from Pantalogy of Cantrell, or thoraco-abdominal syndrome, an ultra-rare condition that affects just five in a million people.

She told the BBC: “This is my heart. I’m the only one that has this.

“When I’m getting dressed, I put soft clothes on to not hurt my heart.

“And I just walk around, I jump, I fly, I run.” Well I am not supposed to run but I love running.”

When she was born in Russia, medics warned her mother Dari Borun to prepare for the worst.

Little Virsaviya’s heart can visibly be seen beating under the thin layer of skin holding it in her body.

I always want to stay healthy and strong ?? it’s much easier to do so with @SkinnyMintCom and their #SuperFatBurning gummies? I use the Power Up gummies as my natural pre workout ? so it’s can give me energy to push harder in the gym ????#SkinnyMint #FatBurning #ad my #VirsaviyaWarrior is super strong as her mommy and she need no extra energy like I do ? she is a pure energy ?⚡️ she always want to do whatever I do and even more ??? I’m so happy she can be that active and strong despite of her condition #VirsaviyaArtHeart @fit_thick_riri #fitthickriri #ijustloveher #stillstrong #staystrong #stillbeautiful #powertv #tv #oprah #theellenshow #healthylife #healthyliving #jesuslifestyle #jesuslove #jesuslovesyou #godbless #ifeelblessed #godisgood #godisgreat

A post shared by ✨?@fit_thick_Riri?✨ (@dariborun) on Sep 20, 2017 at 5:20am PDT


Dari said: “Doctors told me Virsaviya had a really rare condition. But they said she won’t survive.

“When I saw the first time how her heart was beating, of course to me it was something special.

“Virsaviya is alive and she can breathe and she can live.”

The worried mum moved her family to the US in the hope Virsaviya could have surgery.

But, devastatingly, she was told her little girl wasn’t strong enough to survive the procedure because of her blood pressure.

I don’t care if someone all the time deleting my posts and if someone don’t like my #VirsaviyaWarrior ? I will still share with this world of beauty and the uniqueness Of my perfect #BathshebaStrong❤️ #TeamBathsheba #BathshebaStrong #michelleobama #barackobama #theellenshow #WITW #frigo #smsaudio #powertv #ilovejesus #ijustloveher #ifeelblessed #oprah #socialmedia

A post shared by ✨?@fit_thick_Riri?✨ (@dariborun) on Oct 17, 2015 at 5:27pm PDT

She added: “I was really upset about that because they kept telling me she will die soon.

“It’s not easy for Virsaviya to live with her heart on the outside because it’s really fragile.

“She has to be careful as of course she can fall and it can be really dangerous — she can die from that.”

#VirsaviyaWarrior my #Russian #princess ??? ? #PrayForBathsheba #prayerworks #whenyoubelieve #ibelieve ?? #TeamBathsheba #theellenshow #oprah #tv #powertv #socialmedia #obama #ifeelblessed #ilovejesus #ijustloveher #miamikids #miamiModel #kidmodel #kidsmodel #childmodel #kidsfashion #modelagency #russianmodel #native

A post shared by ✨?@fit_thick_Riri?✨ (@dariborun) on Feb 4, 2016 at 2:38pm PST

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